YES, trust me I know..... how ridiculous!
Some children have no nurses, no one to take their blood sugar through out the day, no one to administer insulin, no one watching for signs or symptoms of hyper or hypoglycemia. All children have no one to administer a life saving dose of glucagon because this is not allowed within the schools. These poor children are all alone with this very complicated and very delicate balancing act of a disease called type 1 diabetes.
Just recently I found a group on facebook called Support for Children with Diabetes in Ontario School Systems. The group was started by a handful of parents that had enough, they wanted more from their school system and they are trying to change the way our Ontario school board treats our type 1 children.
So I joined, I want to be a part of this!!
I have spent 3 long nights trying to compose a letter to my government asking for a change!
Here it is:
My name is Nicole ....... and I am writing to ask for your support in our quest to induce changes within the
These children are living with Type 1 diabetes every day, hour, minute, second of their lives until a cure is found. Every day these children need to ensure that their blood sugar is in a safe and “normal” range to avoid very serious and sometimes deadly symptoms caused by high and low blood sugar levels. Sending these children to schools 5 days a week where the staff are not educated on the signs and symptoms or the dangers of Type1 diabetes, and consequently do not have the ability to help in the case of an emergency, is one of the most stressful and challenging experiences that I, as a parent, deal with.
On February 13th 2009 my four year old daughter Cara was diagnosed with Type 1 diabetes after 3 months of on and off "flu" like symptoms, 4 doctor visits, a significant weight loss, an awful rash on her bottom, constant urinating and unquenchable thirst. She was very sick and had a blood glucose of 53.2 mmols (5mmols is normal). This diagnoses has changed our lives forever.
We, as parents, are pleading for the
Type 1 diabetes is an autoimmune disease. Cara’s pancreas was attacked by her own body and now, because of the destruction of her beta cells, her pancreas does not produce insulin, an essential hormone. It acts as a key, opening the door to the body cells, allowing glucose from the food that we eat to enter and be used to make the energy so vital to the cells’ function.
Children who suffer from Type 1 diabetes are constantly working to find a balance between food, insulin and activity. Blood glucose levels go up and down throughout the day and there are many factors that cause such a change. Children with Type 1 diabetes must be aware of their blood glucose levels using a blood glucose meter frequently. A lancet is used to poke the finger, a drop of blood is placed on a strip inserted in the blood glucose meter giving a blood glucose level and an accurate idea of the steps needed to regain the balance.
One way a child regains the balance is by injecting insulin. In individuals without Type1 diabetes insulin automatically accommodates blood glucose fluctuations. However these children do not produce insulin and they need to administer insulin through injection, insulin pen or an insulin pump. Cara receives four shots of insulin a day, at breakfast, lunch, dinner and bedtime. All food that enters the body of a Type 1 diabetic must be carefully measured or weighed to establish the amount of carbohydrates which are very important to a Type 1 diabetic, however can be very dangerous as well.
There are two immediate consequences of blood sugar imbalance. If the blood sugar level dips too low, the child can become shaky, experience a fast heart beat, start to sweat, become hungry, anxious, nauseated, suffer from a headache, impaired vision, dizziness and irritability. If no sugar is given to that child they may become confused, drowsy, unconscious and or the child may suffer from a seizure. This is called hypoglycemia.
If the blood sugar level climbs too high symptoms of stomach pain, nausea, vomiting, blurred vision, frequent urination, excessive thirst, irritability and fatigue will occur. This is called hyperglycemia and if left untreated it can lead to, unconsciousness, coma, seizures and or ketone production, a byproduct of the body breaking down fats in order to get energy which lead to diabetic ketoacidosis. Diabetic Ketoacidosis is very serious and deadly for children with Type 1 diabetes. Every time a child’s blood sugar fluctuates and is out of safe range irreversible damage is being done to the body. This damage, over time, can lead to blindness, heart disease, kidney problems, amputations, nerve damage, stroke and death.
Type 1 diabetes is a very complicated and complex disease. It requires intense math, cognitive reasoning, a deductive mind and a steady hand. If the delicate equation between food, insulin, activity or blood glucose levels are off, there are disastrous consequences. My question to the Ontario school system is how can a four year old, newly diagnosed Type 1 diabetic child, be expected to take on all of this information and properly care for themselves when, we as parents, have a hell of a time? They need support and we need to make a change.
Please take the time to read the attached
Here is a link to read the New Brunswick school system's 704 policy http://www.gnb.ca/0000/pol/e/704AH.pdf