The time of year and the weather starting to change, the kids have just more to do therefore I have more to do, or just a common old break down and not being able to keep up with the things that I once was able too......for example blogging.
Sooooo I decided that I will do a little bit of this and a little bit of that post. These are topics that I would have loved to dedicated a whole blog to but just can't get around to writing them before something new comes up.
I will start off with maybe the reason for the break down, the dreaded A1C, the "D" parent's report card. Every 3 months we the parents, the ones responsible for the care and management of our diabetic children get to see what all of our hard work, sleepless nights and consent worrying has accomplished for our D children. A small sample of blood is taken and it gives the doctors a number, that number represents your child's average amount of sugar in their blood for the past 3 months. Our doctor likes to have Cara's numbers under or equal to 9.0%. With that being said they LOVE seeing a 6, at least that's what it sounds like, we have NEVER had a 6 before.
So our last appointment we did not do to good, 10.8% was our number......not good! So I worked sooo hard, really I did, and our number at this appointment was 9.4%....still kinda poopy! I was so thinking and hoping that our number was going to be in the 7%'s....wow what a surprise, a big fat 9.4%.
I felt beat, discouraged, upset, mad and most of all I felt like I let Cara down. All I wanted to do was quit, give up, through in the towel, find someone else who is more capable of adding, multiplying, giving shots, doing corrections, etc, etc. Someone who can just give it to Diabetes because obviously Diabetes is just walking all over ME!! But then I read some amazingly, wonderful, and aspiring comments from all my wonderful friends, blogger friends, facebook friends, friends that I have known for years and years and others who I have just met within this last year, friends that have children with D and friends that do not (thank God). And all these wonderful, amazing people in my life told me that I did do a great job and I am doing a great job and I will continue on doing a great job and for that, I thank you all and I love you all :)
OK next on the list to share, the inspiring parents over at Diabetes in Ontario Schools who are trying to make our schools safer for all the children living with type 1 diabetes in our Ontario school system just sent an email out and it reads :
Hi Everyone,
We just wanted to let you know that we had a good meeting with the Ministry of Education this week. They let us know they are currently revising PPM 81. This is the policy that deals specifically with health issues in schools and has not been revised since 1984. They have an outside consulting firm that is preparing a report of recommended revisions and have asked us to put into writing what NB has that PPM 81 currently doesn't have. We are working on that and will be getting back to them early next week.
Since we know health issues are top of mind at the Ministry right now we have also decided to contact the media as it is good timing. If you are in the Toronto area or have access to CBC Radio 1, please listen to Metro Morning (during the news) tomorrow morning that airs at 5:30/6:30/7:30/8:30 as we have a piece airing. With the media you never know what they are going to put together but any coverage on this issue so we can educate the general public is a good thing. An article will then be posted online and they will most likely open it up to comments. I would urge you all to take the time to write a comment of support -- the more support we garner the more attention they will pay to the issue.
With Regards,
www.diabetesinschools.ca
Way to go and thank you to everyone who is working so hard on changing a system that has not been changed since 1984 yes that is right 1984... WOW. I was reading some of the comments at the bottom of the article from the ignorant individuals who have no idea what it is like sending your child to a school that has no care, or need to learn how to help your 4 year old daughter manage a what can be deadly disease and it infuriated me.... to say the least! This may NEED it's own post at a later date, I just thought that it was important to get the word out about the process that is being made.
Next, I wanted to give a big shout out to the Steven and Chris show. It is on CBC, weekdays at 2:00pm, I guess I could have called this post CBC updates. 2:00pm is nap time in my house which use to mean blog time for me. However a little 4 year old name Cara is not wanting to have many naps anymore sooo while the babies sleep, Cara has quiet time on the computer. Yes I know, we should be reading or colouring or something productive like that but I just need a break some days. So I sometimes do some channel surfing while sitting on the couch...great exersise, really helping with toning my butt :) Any who, I caught an episode on Steven and Chris about Diabetes. Now let me tell you I was nervous, so nervous I thought to myself do I really want to waste my channel surfing workout time watching a show that is giving out misleading info and reinforcing all the misinformation about diabetes? Then I would have to sit at a computer typing out a mean and threatening letter (yes that is what is has come to, they just will not listen if you write a stern, informative letter...trust me I know!!) But I decided to give them a chance, and wow I was so happy that I did unlike Oprah or Dr. Phil and I'm sure so many of the other programs Steven and Chris took the time to make a clear, distinctive clarification about the differences between type 1 and type 2 diabetes.
Now they did not use the term type 1 and type 2 diabetes through out the whole episode and yes of course it focused around type 2 but they did define type 1 and they did clarify the huge difference between the two, So a great big THANK you goes out to Steven and Chris. And yes I will be writing them a wonderfully nice letter now :)
Last but of course not least, Kailyn won 1st place on her science fair project and is moving on to regions and Kylie and Connor both received student of the month for being such caring kids. When I told my husband he giggled and said "well at least they are caring kids" :)
4 comments:
Blazing a trail isn't easy...but way to go! I hope big changes are on the way for your school system!
Congrats on your kiddos awards! How can they not be perfectly caring with a mother like you!
So proud of you, my friend! You've done great with Cara's A1c and I love the advocacy work you're doing for the school!
Check out those kiddos! WOW!!!! Just further affirmation of what a wonderful home they come from! Keep us posted on Kailyn :)
Yeah for the science fair!
Great job with the school system, you're making a difference!
Maybe Steve and Chris should talk with Dr. (cough cough) Oz.
psst...I HATE A1C report cards too!
Your kids sound so nice and caring...you must be one proud mama.
Keep up the work with the schools and keep us posted...these challenges really get me fired up. I had to go through some funk with the schools last year when Joe started K-garten.
A1C progress! YAY. I soooo hate going to get the news of the A1C quarterly...I feel like I have to go in and face the music :o(
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