A few months back our pediatric diabetic clinic sent out the Trail Net flyers and I knew that I wanted to sign the whole family up this time because we missed it last year and I was bummed.
Trial Net (click on it, is a link) you ask??
The TrialNet Study Group is a network of 18 clinical centres, internationally, dedicated to conducting studies in the early treatment, prevention and study of type 1 diabetes. Eligible participants for studies in Type 1 diabetes (T1D) research may be family members of people with Type 1 diabetes or children, adolescents and adults who have been recently diagnosed with type 1 diabetes.
The Hospital for Sick Children TrialNet centre has built strong working relationships with the 17 pediatric diabetes programs close to the Greater Toronto Area all of which each collaborate in offering annual recruitment events for the Natural History study.
The study is looking at whether relatives of people with type 1 diabetes may be at increased risk for developing the disease. We are able to test for the autoantibodies (proteins that attack and destroy the cells in the body that produce insulin) in 1st and 2nd degree relatives of people with type 1 diabetes.
As a mother with 6 children and 1 of which is T1, the dreaded though of another one of your children being diagnosed with this monster of a disease is always in the forefront of your mind. Whenever they ask for another drink, wake up to go to the bathroom in the middle of the night, have a huge appetite out of no where, or start acting a little off, the agonizing thoughts of their diagnoses start running through my head. It takes all my strength not to run and grab Cara's meter and test that child (I have given into these fears a few time and everyone of the kids except Kailyn have been tested a few times).
Now you have to understand I have
a 2 year old
a 3 year old
a 4 year old (Cara my T1)
a 6 year old
a 8 year old
and a 13 year old
so they are constantly asking for more to drinking, more to eat, going to the bathroom at night because they did not listen to their mother before they went to bed (especially Kylie) and acting a little off, it's just part of growing up and it scares the living HELL out of me.
SO, back to Trial Net, I thought that this would be a wonderful way to calm my obsession when all the test come back negative and I could live in peace at least for a few weeks without the constant worrying.
of course life got in the way and I missed registration for the kids...CRAP I'm going to have to wait another year for this now...So I thought!
Yesterday I received a phone call from my husband at about 4:30 he was on his way home because I was not feeling very well (darn allergies) and his car broke down (darn car) on the way. Someone had help him over to the side of the road and he was waiting for his mechanic to get there. Not 5 minutes later the phone rings again and it's the pediatric clinic this time asking if I would like to bring our family down to the clinic for the Trial Net study because another family has dropped out and they have a space opened now.
NOW??... RIGHT NOW??...you have to be kidding me!! a spaced opened now!!
AH, HELL YES... I WOULD LOVE THAT SPACE!!
HOWEVER I HAVE NO, NIL, NOTA, VEHICLE TO GET ME DOWN THERE!!
WHAT IN THE WORLD, YOU HAVE TO BE KIDDING ME!!
Crap, so ya... now I will have to wait another year until I can have my 2 weeks of peace from this voice in my head telling me that the dreaded day is coming when another one of your kids will be introduced to a life with D.
Oh and to top it all off Cody, my 2 year old is obsessive over his bottle this morning, more baba more baba is all that is coming out of this kids mouth (ya I know, he is 2 and should be using a sippy cup...but for goodness sakes he is my baby and I will keep him that way as long as I can) he is extremely cranky, tired and is just not himself... someone is getting a BG check when Cara comes home with her meter...Sorry CODE!!