This whole experience has taken me right back to the first weeks of diagnoses. I'm stressed out and confused with information overload and to top it all off I have a massive headache and an overwhelming feeling of exhaustion since we got home from the endo appointment yesterday.
However the one HUGE difference with this experience that is getting us over this bump along our T1 road is the amazing road side assistance that I have now. The support of the DOC is just amazing, from comments on my last post to comments people are sending me on facebook. The love and the acceptance and encouragement is overwhelming and amazing. THANK YOU!!
OK, lets get down to the CGM, so far (day1) I LOVE THIS AMAZING LITTLE PIECE OF TECHNOLOGY...LOVE IT.
It is like having a "third" eye, you can see things that you were never able to before. Unfortunately we saw a lot of HIGHS all through out the night. The plan was no changes last night or today during school, just to get an idea of what was causing the HIGHS and LOWS. But of course, there was a wrench in the plan. Cara woke up feeling sick with an upset stomach and a sore throat. She did not want to eat all her breakfast so we needed to pull back on her morning insulin and she did not go to school. By lunch she was feeling much better and was able to eat her food. I decided since she was not at school I would start the changes we planed on a day earlier.
AND So far so good, much better then last night...that is for sure. Our graph is starting to look closer to a curvy line that a 2 year old drew rather then the scariest roller coaster ride of your life. Cara is even getting use to the sensor, she has not once worried about it when going to the bathroom or playing. She is still in LOVE with the pump and she feels pretty darn special...as she should! We are now on the hunt for a cute case to put the pump into. I know that there are adorable ones on the internet but with shipping, who knows how long it would be to get here? So we are going to look around locally. I did make sure to enter a wonderful giveaway at Autoimmune Island for a chance to win some really cute stuff including a pump case that we will be needing really soon.
The only thing so far that I'm not to fawned of is knowing that my every decision and action will be put under a microscope in the next 6 days. Of course this is all for a great cause of lowering this kids A1C, but I really think that the need (want) to do everything perfectly when there is NO perfect way of doing this is causing all the darn headaches and stress.
MAN, I JUST NEED TO RELAX...
anyone up for a drink or a few?
9 comments:
CYBER TOAST (imagine us clinking our wine glasses together)...he, he, he....actually I need one too! It is overwhelming at the beginning. When our daughter went on the pump - it felt like diagnoses day when we were sent home and thinking "can we do this?"...we can and you will! Cheers to you my friend...your doing great.
I'll bring the wine :)
I'm so proud of how awesome you're embracing this challenge and the positive attitude you have about making changes. D change has ALWAYS been hard for me...but you're taking this by storm and I can't WAIT to see what happens next :)
YOU ARE AMAZING!!!!
Every number will be looked at, but it doesn't reflect on you...it shows her bodies reactions and that is it. :) I'm so happy that you are already getting used to this new little gadget!
I think you are simply amazing Nicole and I would give anything to "clink" glasses with you and Ronda!!! What a fun time that would be.
I'm with Ronda - CLINK!!
Cheers! Cyber drinks on me!!!!
It's hard to see that cgm data! When incited saw ours, I thought I might puke. But, with time, it's really helped me tighten our control. I'm not perfect- but I am better!
And a drink sounds fab!
I am glad you like the CGM. I must admitt that it is hard when you see the numbers going up and up, but at least you know. Knowledge is power right? It will help you make better dose changes which in the long run will lead to better numbers :) I am glad she is getting use to it. These kids are AWESOME!!
Does she also have a pump or does she still do shots?
Kelly Harp
Add me to the list of peeps taostign a virtual umbrella drink with you!!!! Awesome update and I love that you are keeping it real. Thank you.
Nicole you are tops in my book and I'd have a drink with you anytime...in real life or cyber (if I have to settle!)
Ally started the CGM a couple of months ago and it really freaked me out at first too. I was sick about what I was seeing. I thought her numbers were decent until I saw what was happening in between. The knowledge I've gained is helping me to make better decisions now and for that I am grateful.
Keep up the good work Mama Pancreas...you're doing awesome!
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