A1C 10.8...YUCK!
We have always had trouble getting Cara's blood sugar to where it was "suppose" to be. We are always to high, we make changes and then we are always to low, we make changes then we are always to high. We are never anywhere in between. It's just a vicious cycle of disappointments and frustrations.
I knew going into this A1C endo appointment I was not going to like the numbers, so I did what any chicken shit, frustrated, at the end of my rope T1 mom would do... I sent my husband with Cara to take the disappointment and judgment from our clinic (they really are wonderful and would NEVER say anything bad EVER but I can just feel it...self inflicted).
For all those who are reading and wondering what the hell an A1C is, basically it is a 3 month average of a persons blood sugar. It is often referred to as the parents report card, this time my mark is NOT GOOD!
So after the first part of the appointment my husband and the nurse begin to question some of the night time numbers with some concerns that Cara may be going low during the night. As well she believes that Cara maybe sensitive to insulin and a little too much will send her crashing and a tad to little may cause her to have a lot of highs. I have always felt like there is just NO middle ground for Cara.
We also may be changing the time and type of long acting insulin Cara receives. Right now Cara gets 5 units of Lantus during the night, we may be changing to 5 units of Levemir in the morning.
So with the suggestion of our nurse, Cara received some numbing cream on her bum, My husband came and picked me up to join in on the second part of our endo appointment, the crash course to Continuous Glucose Monitoring 101. For 6 days Cara will be connected to a CGM so we can get a better understanding of what exactly is going on with Cara's body. This will also get us set up for pumping which we all feel will help stop the yo-yo effect that Cara is going threw.
Cara was terrified and as much as we told her it will not hurt because of the cream she was not falling for it. We had to hold her down once again until...all done, we are hooked up and the tears stopped with a smile on her face. She is very excited and is enjoying showing everyone her little bum with the sensor and the pump. She is very nervous about moving or touching the sensor. When we got home she did not even want to sit on the couch because she thought it would hurt. She wants help pulling down or pulling up her pants to go to the bathroom and I'm kinda not looking forward to bedtime,I'm sure she will have trouble falling asleep with the sensor on.
I really enjoy watching the numbers and the graphs which right now are spikes and drops but we will get there.
We also may be changing the time and type of long acting insulin Cara receives. Right now Cara gets 5 units of Lantus during the night, we may be changing to 5 units of Levemir in the morning.
So with the suggestion of our nurse, Cara received some numbing cream on her bum, My husband came and picked me up to join in on the second part of our endo appointment, the crash course to Continuous Glucose Monitoring 101. For 6 days Cara will be connected to a CGM so we can get a better understanding of what exactly is going on with Cara's body. This will also get us set up for pumping which we all feel will help stop the yo-yo effect that Cara is going threw.
Cara was terrified and as much as we told her it will not hurt because of the cream she was not falling for it. We had to hold her down once again until...all done, we are hooked up and the tears stopped with a smile on her face. She is very excited and is enjoying showing everyone her little bum with the sensor and the pump. She is very nervous about moving or touching the sensor. When we got home she did not even want to sit on the couch because she thought it would hurt. She wants help pulling down or pulling up her pants to go to the bathroom and I'm kinda not looking forward to bedtime,I'm sure she will have trouble falling asleep with the sensor on.
I really enjoy watching the numbers and the graphs which right now are spikes and drops but we will get there.
Today was a lot more then what I was prepared for, but it was a great day in our T1 journey and I'm very excited to see what these next 6 days have in store for us.
Now all we need is a really sweet pump pouch, if I'm lucky maybe we could win the adorable one that The Princess and The Pump is giving away, check it out HERE
14 comments:
She is so sweet. I'm sure the data will provide a wealth of information to help make adjustments. No looking back, just forward. :)
It's always nice when they are comforting rather then judging. It is a hard job constantly monitoring BG. I am glad she was a trooper about the CGM. My daughter also wears minimeds cgm and pump. We love it. She really has never said that it bothers her when she is sleeping even the pump doesn't bother her. Good luck! I am sure the next A1C will be awesome! :)
Kelly Harp
I think you'll really like the CGM. It will help. Maybe it's a 4 year old (almost 5) girl thing... Sweets is soooo sensitive at night to corrections. Her ISF is 500! Hang in there, Mama! You'll get this!
Hello...oh my that picture screams being proud of herself. We are proud of her too...soon she will not even know that it is there. Our daughter was also on Lantus at first and then we switched to Levemir. She was MDI for three years...we were so afraid to take the next step with pumping. Will she keep it on, will we understand what to do, etc. etc. All the questions!! We made that step this past July and we are so happy that we did. Our daughter had trouble with the Dawn Phenomenon and the pump really helped us win that battle. Lorraine is right - don't look back, just keep going forward. We consider ourselves still newbies to pumping, but I'm looking forward to attending an advanced pump class to learn more "tricks". Best Wishes my friend!
WOW! Well COOL BEANS :) I can't wait to hear what you think of the CGM!!!!!
The SUPER GOOD news is that this one is behind you...clean slates are SUPERFAB!!!!!
I think you are AMAZING...that number doesn't mean JACK in my book :)
Wow! Good for Cara...what a sweetie she is!
I hope that the CGM provides you with lots of great information. I am so glad to have ours and it is so great to literally "see" what is going on in his body at any given time.
(((hugs))) We're with you, mama!
let me know how you find it. Ive though about doing a cgm for Kai. Ive heard they are wonderful.
You are an amazing mummy - its hard. We had our appt today too. I always feel like I am going into the principals office! I get sooo nervous waiting for them to tell you that 'magic' number!
Yep, no looking back. You are doing a great job and hopefully the CGM will provide some answers to help you guys tweak Cara's dosing regimen.
I love how you sent the hubby btw. You are too funny and I heart you BIG TIME Nicole!
Wow! I am impressed that they were so helpful at the doc and they started the CGM so quickly. Cara is a trooper and you and your husband are awesome pancreas'! can't wait to hear how it all turns out...
Thank you for posting this. My son always had an A1C under 7.9 until his last visit. 8.5
Anyway, I started to think that everyone is having a great A1C except us, leading to more stress than I need. So thank you for sharing and helping me to see that we are all struggling with the same fight. Good luck with CGM.
It is brilliant that you were able to get the CGM...I pray it will give you guys the answers you hope for!
Look! Look at that sweet face! You are doing awesome! Sometimes, it's not all about the numbers! I think the CGM will help so much. Just don't be afraid of the TMI it provides! You rock! Hang in there, you are a Super Awesome D Mama Nicole! :)
I'm sorry I'm so far behind on reading. Just got here and wanted to let you know I read our post and think you are awesome! Very funny too! The comment about sending your hubby to the endo cracked me up!
Stay calm and carry on . . .
XOXOX
Did you just change your background? I read one post and I didn't notice, then I started reading this one and its hearts! Love it!
I cracked up at sending the hubby...I would TOTALLy do that too! :)~
We have the Minimed Revel pump and CGM too!
Hey, measure Cara's waist...I might have a pump pouch or two that are too small for Ally. I'll send em to ya!
Post a Comment