Friday, March 25, 2011

This One Is For Aimee and Epilepsy

Almost 2 years ago we lost a wonderful, sweet, amazingly inspirational and just an all around spectacular family member. Aimee was an angle on earth, she had a heart of gold, a smile that lit up any room and an outgoing, happy, loving personality.   She loved to dance, I really wish now that I had seen her dance I'm sure it was the most beautiful thing!

She was someone that you wanted your child to be like when they grew up and my child LOVED AIMEE with all of her heart. 

Kailyn was drawn to Aimee, she look up to her...I do believe she worshiped the ground that Aimee walked on. 

Aimee was the highlight of any family gathering for Kailyn.  She just could not wait to see her cousin (really her 2nd cousin but who is counting).  She had a way of making Kailyn feel special, even as Aimee got older she found time to include Kailyn.  I once found a text message on Kailyn's phone from Aimee during one summer.  She always was and still is an amazing spirit.

On April 3rd 2009 at the very young age of 16, Aimee passed away after suffering from an epileptic seizure.  April 3rd is also Kailyn's birthday. 

We all were devastated to say the very least at the news of Aimee's passing but Kailyn had the hardest time.  She could not understand why? She could not get her mind around it, only just turned 12 at the time, she was confused, heartbroken and lost. 

Today March 26 is PURPLE DAY!!



And in honor of our dear Aimee, and all those who have epilepsy today The We CARA Lot Blog is GOING PURPLE and I would love for everyone to share a link on their blog or wear purple for the day or say a prayer or a positive thought for all people and their families living with epilepsy, help spread awareness and support for an invisible condition called epilepsy.

We LOVE YOU AND MISS YOU AIMEE, you are always in our hearts and live on in memories, our hearts and our actions.

What is Epilepsy ( I truly hope this information is accurate and correct, I would not say I have "personal" knowledge of this condition and I DO NOT want to spread misconception because we all know the harm in that)
"Epilepsy is a condition of the brain that is characterized by recurrent seizures. Approximately one in ten people will experience at least one seizure during a lifetime. A single seizure, however, is not epilepsy. Epilepsy is a condition that is defined by multiple seizures.

Epilepsy is a seizure disorder. It is NOT a psychological disorder NOR a disease and it is NOT contagious.

The brain is made up of billions of nerve cells or neurons that communicate through electrical and chemical signals. When there is a sudden excessive electrical discharge that disrupts the normal activity of the nerve cells, a seizure may result.

Seizures cause a change in function or behavior. A seizure may take many different forms including a blank stare, muscle spasms, uncontrolled movements, altered awareness, odd sensations, or a convulsion. The location in the brain of the abnormally discharging nerve cells determines the form the seizure will take. Seizures may occur rarely or as often as numerous times a day.

Epilepsy is one of the most common chronic neurological disorders. An estimated 50 million people worldwide have epilepsy. That means approximately one percent of the general population has epilepsy.
Epilepsy can be present at any age although its onset is most often in childhood or in the later years of life."
(taken from What is Epilepsy)

For Aimee



6 comments:

Haley said...

That is a beautiful post. I will pray for aimee and your loving family

Heidi / D-Tales said...

That's so sad! I'm sorry epilepsy took Amy's life. She was too young! I lost my grandmother on my 10th birthday, so I can imagine how her death affected Kailyn.

I will wear purple for Aimee and for you, my dear friend.

Big hugs to you and your family! Love ya!

Denise said...

sorry for the loss to your family....what great a way to remember and honor her and also spread awareness.

Reyna said...

Thinking of Aimee and your family today ... I noticed the purple right away Nicole.

Hallie said...

Beautiful post!! I'm so sorry, Nic. ((hugs))

Gone Bananas said...

So sad but so amazing that you carry her with you and do something so special in her memory! Beautiful!