A circle is the best way that I would describe our life with type 1 diabetes right now.
ONE BIG GIANT NEVER ENDING CIRCLE.
As some of you know we are tweaking and changing and adding and minusing everything that we "normally" do for Cara in regards to her insulin. This is the 3rd time in a few months that we have done such a major overhaul to insulin ratios.
Last Friday I took the clinic up on their offer to place a CGM sensor on Cara and we pulled EVERYTHING back. Her insulin ratio's were over the top, so our clinic told us and felt that we were feeding insulin. 7 units of Levemir (5 units in the morning and 2 unit at night) her breakfast ratio was 1:16, lunch was 1:14 and dinner was 1:20 and we were seeing blood sugar numbers all over the board, more ups then downs not too much middle ground but more then before.
Our wonderful nurse (lets call her D) has in the past and is right now spending soooo much of her time helping us try and find the perfect insulin to carb ratios for Cara. We thought what better way to find a solution then start from square one and hopefully work our way down the A1C ladder.
We changed to 5 units of Levemir (4 in the morning and 1 at night) and breakfast, lunch and dinner ratios were set at 1:20.
And now, slowly but surely we are making our way back right to where we were before all of this started almost a week ago. We are now at 6 units of Levemir (5 in the morning and 1 at night) Breakfast is now a 1:17 and Lunch is now 1:14 but dinner is a 1:35 for now (which will be changing tomorrow because Cara has been running high all night because of it).
But for the most part we are making our way back to the same place that the endo did not like,
the same place that our nurses knew a change was needed,
the same place that had led us to a A1C of 10.3.
the same place that is holding back my pumping plans.
It is the same frustrating place that makes me feel like I'm spinning my wheels but we are getting NO WERE FAST!!
It is taking so much energy out of me
It is taking so much time away from our "normal" activities
and it is making me feel like I'm running in a great big giant circle...and I can't find my way to the end of this, because there is no end. I fell like we are just going to keep on going around and around with shit numbers then ratio changes and just end up right back where we were...I want a solution!
and by the way I hated the movie Ground Hog Day!!
The one positive note to all of this is that it does make me feel better that it was not a "quick fix" and something that I missed. Rather it seems to be a very complicated challenge that well trained and very informed diabetic nurses are having trouble solving...is that a weird way to think about it?
Whatever, I don't care it makes me feel a little bit better!
Until tomorrow my friends, when the sun will be shinning and more insulin ratios will be changed...FUN TIMES