And yet again I turn to you blog to get my anger and frustration out!!
Today was suppose to be a good day...isn't everyday?
But today ended up being the day my plans and a little piece of my heart was crushed by diabetes and my government.
First, My Plan: I was planning to have Cara and us pumping over the summer. What better time to do this right? I have Cara home with me all day and night and I'm able to learn and tweak to my little heart content. We have gone through pre-pump, we met and picked out our pump (Medtronic Veo) and today was the day we were doing to order it.
We met with Cara's endo last month and he told us he wanted to get Cara more "stable" before we started pumping. Today was the day I was going to tell him "listen, we are as stable as we are going to get on injections it is time to pump"
Injections have not been working for us for a while now, Cara's A1C has been in the 10's for months and we have been working like crazy to get it down. The problem is that a .5 increase of insulin is just too much for her, we are fighting dangerous lows all day long, then we back off and we are sky high all day and night. We just can't get the right combo for Cara on shots and it is driving me nuts.
Next issue for the day, the dreaded A1C... how important really are A1C's?
ya I hear it all the time "don't worry your child's A1C is only a number" "it's not a report card"
But guess what, it is now in Ontario!!
Today my government told me that I SUCK!!
Today my government told me that I'm not doing a good job and because of that they are punishing my daughter.
NO PUMP FOR US!!
You know why?
It seems that starting this JUNE all people who would like to apply for a pump which is covered by the Ontario government needs a A1C under 10 to be accepted.
So now in Ontario it seems this little number does mean a lot more!!
So what does an A1C mean to me?
For me it means that I can't get the technology that I need to properly manage my daughters diabetes.
For me it means that I have not done what I'm suppose to do in the eyes of some government official.
For me it means that my plans are a bust...all thanks to a lousy A1C that yes was over 10.
I'm not happy at all...can you tell?
So now we are stuck on shots, stuck on a treatment that is not working for us....obviously. We can't get out of the 10's without causing insane lows BUT here we go again we are going to give it a try...AGAIN!
Tomorrow Cara is getting hooked up to a CGM so we can tweak a little here and there and keep her safe.
Diabetes and this new A1C rule can SUCK IT...BIG TIME!!