Saturday, July 2, 2011

Avoiding The WHYS

I'm guilty...

I hid,

when I should have stood up and stepped up.

I'm not strong right now, I feel weak and defeated like a little girl curled up in a dark empty corner just waiting.

I'm waiting for the strength,

I will step out,

I will once again own this.

but for now I'm beat with frustration and questions

I have been knock down one to many times by the numbers.

That is why I'm avoiding the WHYS?

They are what holds me down.


The whys are no longer the question they are meant to be

they have become the blame I feel.

As much help as our wonderful nurses at the clinic have been, I avoided their phone call the other day and that is why I got this message on the phone because I did not answer the phone...I just couldn't.


I did not want to hear the disappointment in their voice again when I told them the numbers came out differently then what they expected.

I did not want to hear the "hmmmm, OK"... 

I did not want to hear the confusion.

I did not want to hear "I'll look this over and give you a call" or "I'll talk with the other nurses and we'll get back to you".  I wonder what they are "really" saying??

You see, they are working overtime with us, trying to get Cara to where she should be.

They calculate, they configure, they manipulate, they put all their education and all their years of knowledge/experience to work and when the numbers don't turn out the way they expect it to or the way it "should" the only person they have to look at is me and ask the question WHY?

WHY?  How many carbs did you count for that meal (like I don't know how to count carbs)

WHY? What time did you give insulin (I have explained over and over we dose after breakfast, during lunch and after dinner.  They really don't like that because we get a lot of spikes but I explain to them we NEVER know how much she is going to eat.  

WHY? Did you remember the correction (when numbers don't add up they always think something was forgotten)

WHY? How much insulin did you give at that meal (after this question I usually hear the calculator going, checking to see if I figured out Cara's ratio right, that really pisses me off some days.  I know how to add and divide on a calculator...thank you very much!)



WHY? How many carbs where given for that snack (This has always been a tricky one for us, the nurses do not like us "feeding insulin" however if we don't keep her tight as to feed insulin she is HIGH until the next meal time.  So we are always tweaking her snack amounts and that is just frustrating)


These are all very logical and helpful question when trying to figure out carb ratios and insulin doses and I know they are meant to knock me down but sometime all I hear is...

WHY? do you have any clue as to what you are doing??  

I'm just burned out, it has been about 9 months of intensive logging and talking and emailing back and forth with the clinic and we still are not where we "should" or want to be.  We keep going around in circles, I keep thinking what the hell I'm I doing wrong? and they keep asking WHY?. 

We know what we are doing, they know what they are doing but sometimes it does not translate into good numbers for Cara...WHY?

I have no fucking clue?

So I just needed a little break, and that is why I did not answer the phone.  This weekend I'm not listening to the whys?  because I feel like that question is not a question at all anymore I feel like that question has turned into blame.

8 comments:

Leighann said...

Oh my gosh...I have a similar post in my head.

I have been so frustrated lately because we are doing everything we know how to do and her A1c just won't budge.

And then the nurse practitioner asks what we aren't doing that we should be doing.

If I knew, I'd be doing it!!

And the logging and basal testing and faxing is so exhausting. As if faxing in our logs is easy!

Hang in there. I'm right here with you. Let's just keep plodding along.

Kelly said...

I feel so frustrated for you, and I would feel the same way! I'm sooooo sorry this is such a trying time for you! (hugs)

Nikki of Our Diabetic Warrior said...

My heart goes out to you and I feel your frustrations. We've been through the gamut with our son. We found an underlying celiac disease AND insulin resistance with his type 1.

Have they tested Cara for celiac disease? That can do a number on blood glucose levels!

I pray that God lifts you up during this time and gives you the strength to keep going. Don't give up! We are all here for you !!!!

Misty said...

Nic, I'm so sorry that you are feeling so beat up. Wish I could curl up in your corner with you and give you a great big hug! You are an amazing D Mama, just keep fighting the good fight.

Lora said...

I dont blame you for taking a break for the weekend. We need those and it might refresh you to come back and kick the "whys" in the nads. Just sayin!

You can always come down here and hang out with me :)

Alexis Nicole said...

(((((Hugs)))))) thinking of you.

Barb (Diabetes Advocacy) said...

Take a breath. Step away. Look after Cara to the best of your ability and block out the whys, the frustrations, and the accusations. We all go through this and its torture. Lean on your friends who live there too. It will get better. There will be light. This is a long hard road but thankfully we have a wonderful diabetes family to lean on along the way. (((hugs))) to you all!

Barb (Diabetes Advocacy) said...

Hang in there. Breathe. Step away for a bit. Know that you are doing the best for your daughter and block out those why's. We all have these frustrations and numbers that fight us all the way. Diabetes is a formidable foe but we will win. Be strong and lean on the ones you live there with you...your diabetes family. (((hugs))) to you all!