Friday, July 1, 2011
No, No I'm not crazy!
On Monday we are getting a phone call to make an appointment with our new "endo". That' s right everyone that has been following this journey, our plan might be back ON.
Let's review, shall we?
A while back we had an "endo" appointment that did not go so well, I was crushed. We actually were having many, many endo appointments that were not going so well, which had lead to 3 A1C results in the 10's. Not a good feeling as a parent at all!
After every appointment we would work our butts off with our nurses trying to figure out just the right dosing and to our dismay high A1C's every time. Nothing seemed to be working, we were frustrated, our nurses were frustrated... but in the back of my head I had a plan and everything was going to be alright.
My plan was to get pumping during the summer....this was my saving grace...THE PUMP!!
So we did pre-pump, we met with all the reps and I was ready to GO and
(input tires squeal here) ... our A1C was over 10 and for us in Ontario if your A1C is over 10 the government will not cover the cost of the pump. You must have 3 A1C numbers lower then 10 = 9 months of less then 10 in order for the pump to be covered. I could not believe it!!
All these years people telling me the A1C is only a number, it's not a report card blah blah blah...well someone forgot to tell the Ontario government.
I received a lot of support from the DOC knowing how crushed I was. A few tears and a few emails from Canadian T1 mom's who knew what I was going through and there seemed to be a light at the end of this tunnel. They informed me that all I really needed was a letter from my Doctor stating that we have been very active in our daughters care (which we have, 100%) and that the pump would help us achieve our goal of an A1C under 10 (which I believe whole heartily it would).
I was beaming...wonderful a way around a nonsensical rule. So with my figures crossed our nurses went to work getting all the paper work filled out and ready for the "endo" to sign and guess what the man would not sign them. He said no way, we wants Cara to be more stable on shots before we move to a pump.
So I did what any parent of a child would do, I cried and then I left the ass (I say **ass** as a pissed off pancreas, I'm sure he is a great guy outside of the diabetes world).
Only problem was I started hearing people talking that it would be nearly impossible to see another "endo" in our clinic (there is only 1 pediatric endocrinologist clinic in our area, with pediatrician as our acting endocrinologist). I guess they don't like people jumping from one doc to another.
So again...I was feeling lost BUT I was not giving up this fight for a pump.
I went straight to my family doctor, asked for a referral to another "endo" in our clinic. I called the nurses at the clinic so they knew that the referral was placed and guess what???? Oh and by the way our nurses are 100% behind us in ALL our decisions that we have made, they have been there with us and they GET IT!
Yesterday I received a message from one of our nurses on my phone saying that on Monday I will be getting a phone call to make an appointment with hopefully the doctor that will soon be our new endo!! I was so happy to hear this message.
So there is a little hope.... my plan can still have some life after all and we can get poor Cara out of this roller coaster ride of numbers and high A1C.