Monday, December 12, 2011

This Santa and CFRD (Cystic Fibrosis Related Diabetes)

My cousin Kurtis is funny...OK, OK the kid is hilarious and has started a YouTube channel that I have been wanting to share with everyone BUT he's a do you say...Edgy, crude (sometimes) and a bit... well, controversial.  But when I saw this skit I thought it would be a great way to educate people on CFRD and CF since "Santa" brought up diabetes. 

This Santa is my cousin Kurtis, this Santa has Cystic Fibrosis and this Santa knows about CFRD.

CFRD or Cystic Fibrosis related diabetes is diabetes that forms due to complications from Cystic Fibrosis.

The Origins of Christmas, how it all began.  
(note to those with sensitive ears, there are a few BAD words)

Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. There is no cure as of right now for CF. CF is a multi-system disease, primarily affecting the lungs and digestive system. In the lungs, where the effects of the disease are most devastating, a build-up of thick mucus causes increasingly severe respiratory problems. It may be difficult to clear bacteria from the lungs, leading to cycles of infection and inflammation, which damage delicate lung tissue. Mucus and protein also build up in the digestive tract making it difficult to digest and absorb nutrients from food. Large quantities of digestive enzymes (average of 20 pills a day) must be consumed with every meal and snack. As improved therapies have helped to address the malnutrition issues, virtually all cystic fibrosis-related deaths are due to lung disease.
(information taken from Cystic Fibrosis Canada)

CFRD is extremely common in people with CF especially as they get older. CFRD is found in 35 percent of adults aged 20 to 29 and 43 percent for those over 30 years old.  Diabetes in people with cystic fibrosis combines the characteristics of both type 1 and type 2 diabetes. The build up of thick secretions in the pancreas eventually damages the hormone-producing cells, causing insulin deficiency due to scaring in the pancreas. In addition to insulin deficiency, people with cystic fibrosis often wind up with insulin resistance because of:
  • Chronic infections
  • High levels of cortisol, a hormone that the body secretes in response to stress
  • Frequent exposure to corticosteroids which are anti-inflammatory drugs sometimes used in the treatment of lung conditions that mimic the action of cortisol.
The symptoms of CFRD are the same as the symptoms for any type of diabetes:
  • Excessive thirst
  • Frequent urination
  • Excessive fatigue
  • Unexplained weight loss
The problem is that all of these symptoms mostly occur in people with cystic fibrosis, whether or not they have CFRD. This makes early detection difficult.

CFRD is usually treated with insulin.  

I clearly remember when Kurtis was born and I clearly remember when he was diagnosed with CF.  I will never forget the sadness and devastation that followed and I never want to forget the love, the hope and the belief that one day we will find a cure for Cystic Fibrosis. 

Cystic Fibrosis Foundation
 Great Strides  



Joanne said...

We have a dear friend here in Dallas that has CFRD... her story is amazing! She's also on the omnipod, but we haven't ween her since Elise started pumping.

Thanks for the info (didn't watch the video because little ears are in the room)

Wendy said...

Awesome informative post! Funny stuff.........totally cracked me up!