The results are in for Connor...well kinda?!?!
Let me break it down for you:
TrialNet Test #1: Connor was the only one in our family of 8 that tested positive for 1 of the autoanitbodies that TrialNet tests for. We were asked to do a confirmation blood test.
TrialNet Test #2: Connor again came back positive for the MIAA autoantibody. We were asked to do a 2 hour Oral Glucose Tolerant Test.
TrialNet Test #3: The results just came in and the nurse needed to consult with the Doctor. Connor came back negative for all autoanitbodies during this test. They are a bit confused at this result and really had nothing to tell me...except they want to do another blood test. I asked for Connor's A1c which was 5.6% and he's blood glucose was in range through the whole 2 hour test, peaking at 8.0mmols at the half-an-hour mark.
My thoughts: When the test(s) come back negative it is a great relieve and something that has helped this mom of 5 non D's feel a little bit better every day. However when the test comes back positive, well that is a different story. The worrying is a b!tch (as many of us know) and to have a confirmed positive that the worrying may be justified just outright sucks. For me this whole 1 year of testing, waiting and worrying has really given me nothing in the end...except for maybe a few years off my life (that's a joke!!) I'm sure I would feel completely different if these results ended up with some short of answers but for now there will be no more testing for my kids.
I can wait and worry and watch all on my own. We will see if my opinion changes in the end but for now that is where I am at in my situation.
If you are interested in reading more about our TrialNet journey here are some links.
TrialNet And The Worrying D
Our TrialNet Video
TrialNet Results Are In
Our Trip To London and The Banting House