Today, thanks to my wonderful friend Alexis and writer of the Chronicles of D-Boy and Ribbon
today it is Special Sib of A D-Kid Day
We have dedicated one day of Diabetes Awareness Month to these special siblings!
Whether you blog,Facebook, tweet or do You Tube videos you can participate!
Tell us about this special Sib,what makes them special and how they support you or your D kid.
Share pics, stories and more!
Feel free to share them on the Facebook page as well!
Living in a house that is so focused around diabetes is not easy when you DON'T HAVE DIABETES.
Your parents are super stressed and extremely tired all the time.
The whole house seems to run around the person with diabetes and HIS/HER schedule, when he/she needs to eat, what he/she needs or CAN eat...you might not get that special treat that you wanted all day because your type 1 sibling is running a bit high and your mom needs to get his/her blood sugar down before EVERYONE is allowed to eat (that is how it works in my house anyways).
In a house so focused around diabetes you may hear a D-sib say "Why does
(D-sib name here) have diabetes? I hate it!" when something important has to
be missed due to a sick type 1 sibling and your plans go askew . There always seems to be little, tiny, life threatening emergencies that happen through out the days that take away any bit of priority that you, the non-D sibling may have had at that given time.
Time with your parents is NOT shared equally between you and your D-sibling. Many times that T1D-sibling has a monopoly over parent-time and there is nothing you or your parents can do to change it.
In a house so focused around diabetes you may hear D-siblings say "I wish I had diabetes" when candy/sugar is given to raise a blood sugar or when their D-sib gets a special gift for not crying/screaming or fighting during a site change.
However there are some positives to having diabetes in the house...at least in our house:
1. We get to go on vacations that we never would have gone on if Cara did not have diabetes to celebrate a wonderful year well done living and fighting diabetes on Cara's D-anniversary.
2. We get to be part of wonderful and fun activities/events that we would never have been part of if Cara did not have diabetes. For example our WDD Photo Scavenger Hunt that we did with Connected in Motion and our JDRF Outreach has great events for the whole family about once every 3 months.
3. We have meet and made the most amazing friends in our diabetes community. They have become our family.
4. We have become closer as a family because we fight for one cause...to watch out and care for OUR Cara. To make sure that type 1 diabetes does not win, we work together and this makes us stronger and closer.
These siblings see the bigger picture, they understand the importance of this fight...this life. They put their needs aside sometimes and stand up for their sibling with diabetes and they are proud when they do so.
Yes, there may be some complaining, some sense of unfairness (I'm the parent and I feel like that sometimes) but at those times that is when we take a special second out from diabetes with that sibling and give them a great big hug, a gracious THANK YOU and tell them YOU ARE THE BEST SIBLING A TYPE 1 CAN EVER HAVE.
I love my kids for understanding, learning, loving, advocating and fighting for Cara.
In our house we have 5 special siblings of Cara's (our D-Kid) and they
all seem to hold a different role in supporting and caring for their
Kailyn is the advocator and the babysitter.
Trust me, you do NOT want to do wrong by Cara and diabetes if Kailyn is
around. She hates when Cara is mistreated because of her diabetes and
she will not hesitate to let you know. Kailyn has gone head to head
with adults for her sister. Also she is our babysitter, I trust she can
handle T1D while we are away and as many of you know that is a life
saver for any parent who has a child with type 1 diabetes.
is our knowledge guy, from the moment Cara was diagnosed he had the do's
and don't s all figured out. He keeps us within the rules at all
times. If we forget to do something...say... count a carb or two he will
make sure we know it. He's also been known to keep an eye out for his sister. He made sure Cara was not sneaking food (she went through a phase and Connor was
there "telling" on her whenever he could). He is a great big brother.
Just like Connor, Kylie is on look out too however she plays a very needed and unique role for Cara. Cara is very shy, always has been, Kylie and
Kirstin for that matter are her side kicks. They sandwich Cara, one on each side when they walk into a room. However, Kylie holds a very
important role, she is blunt, very matter of fact and one
person with the wrong tone about diabetes Kylie is all over that making
sure that Cara does not feel out of place or bullied in anyway. Kids
can be mean and sometimes they may have no idea they are being so. All
it would take is for a kid to say "oh, you have diabetes?" in a
grossed-out kind of tone and Cara would shrink up and want to disappear BUT not
with her big sister around. Kylie will diffuse the situation and answer for her "Yay, she does...SO
WHAT?" and that is the end of that!
Kirstin, she is there
for the fun of it! Kirstin is Cara's younger sister and they are best of friends. Cara can usually find some fun when she is around Kirstin.
And if she can't Cody is right there waiting to pick up where Kirstin left off.
But most important ALL Cara's siblings make her feel NORMAL, they test her and make her achieve her best. There is no "well, she can't do that because of diabetes" and they certainly don't go easy on her because of diabetes. Nope, she's not getting out that easy around here!! and that is what I love the most...she is one of them...and THAT'S FAMILY!
HAPPY SPECIAL D-SIB DAY TO ALL THE AMAZING, OUTSTANDING SIBLINGS OUT THERE!